This is going to be one of my shorter posts. I am writing this post in hopes of recruiting more prayer warriors for Deklyn. Thursday afternoon Deklyn was rushed to ICU. Other times this has happened it only takes a day or two and we have our old Deklyn back. This time has been much different. Right now all I am going to say is that we need you all to get on your knees for us. Deklyn is in a fight for his life and we are not giving up on him. I have mentioned before that Deklyn has Pulmonary Hypertension, this is what we all believe has been the root of this problem. We spoke with the study doctor for HPP and she said his bones are not the problem any more, in fact his bones are doing amazing! His lungs are giving us a run for our money. The past few days have been the hardest in my entire life, I do not think I have ever cried so hard and so long in my life. No one, not even doctors have said that they are giving up, but we have had to talk about the possibility of death. We are not accepting this option, although as a parent this is a very hard place to be. Of course I do not want my child to die, I want him to have an amazing life and experience things every child gets to experience But at the same time, in heaven he will not have to experience all the crap he has been going through here on earth and he has definitely had to endure more than his fair share. He is the toughest person I know. He would finally be free of all of this. I know God is working in my son, my son has a story that the world needs to hear. Please share my sons story, pass along my blog... get as many people praying as possible. In the name of Jesus my son is healed and I praise God for what he has done. The world will be amazed and in awe of what God has done for our son. Thank you all for your continued support and sharing our story with others to get as many people praying as possible and praise God for the battle has been won and the enemy has been defeated!
My brother made a video a few months back to get people to pray for Deklyn, here is a link to that if you want to share this with others please do!
we've been thinking and praying for you guys SO much and will be continuing to do so! May God fill you guys with more grace, strength and peace than is humanly possible.
ReplyDeletemuch love,
eric mel and elsa
Praying for your family during these hard times! Your little guy is adorable!
ReplyDeletegot people here in the edmonton area thinking and praying for you and your family!
ReplyDeleteHi there,
ReplyDeleteI came across your blog today and found it very touching. You see, my husband and I have had two babies with hypophosphatasia. But they both passed away at birth. Our first one(a boy) would be turning 18 Feb. 13 and our second one(a girl) would be turning 11 June 4. It was very painful giving up my babies but now I rejoice with them for they are in a much better place. God blessed us with four healthy children.
I admire your faith and trust in God. I will be praying for your little boy and also for you and your husband.
God bless!
Praying for you all Cassondra! I just posted your blog to our site so those following our journey can follow and pray for you as well. I wish so badly for you that you could just have the "normal" you so very much deserve! Thank you so much for that coffee so long ago...soon we can have another one together. From one mom who understands having to make difficult decisions for our children to another. We just need to keep our faith and trust God completely as hard as it is and more so when nothing makes sense. We are believing for your miracle!! xoxo
ReplyDeletePraying for Deklyn's healing and for you as parents to find rest and peace in Christ Jesus.
ReplyDeleteGod is ALL POWERFUL and hears when we call on him! My son (born with gastroschisis) is a testimony of the miraculous power of prayer. I understand your heart and will pray!
ReplyDeleteCassondra, Deklyn is such a beautiful baby. I am keeping you and your family in my thoughts and prayers.
ReplyDeleteLots of love,
Sasha
Thank you for sharing Deklyn's story. Praying that whatever happens, your family feels God's peace and love.
ReplyDeletePraying for healing!
ReplyDeleteCassondra, my prayers are definitely with you, Deklyn and your family. I will make sure when I chant tonight (that's how us Nichiren Buddhists pray) that I will include you guys in there. Just remember anything is possible and anything could happen--it could all turn around so have faith and don't give up! Lots of love and hugs to you. :)
ReplyDeleteSending prayers on a wing to you and your little guy!
ReplyDeleteYou have my prayers as well as all the love and healing energy I have to offer.
ReplyDeleteGod bless your family and your beautiful little boy!
ReplyDeleteI am praying for you and sweet baby D.
ReplyDeletePraying for continued strength for your family, and a miracle for Deklyn!
ReplyDeleteCassondra, be strong, me and my friends from Brazil are praying for you and your beautiful baby boy. The best energy and thoughts for you all!
ReplyDeleteWith love,
Gustavo Eiras
Wishing for the best for you and your family. Stay strong!
ReplyDeletePraying for Deklyn and your family, your strength in the face of adversity is inspiring!!!
ReplyDeleteI am so sorry for the trials you, your family, and Deklyn are going through. I pray that God gives you the strength to accept whatever His will may be. I pray that Deklyn gets through this, will be stronger because of it. Surround yourself with family and friends. Their support and prayers will bring you hope. Love, hugs, and all my prayers sent from Green Bay, WI.
ReplyDeleteHey there! You've got prayers from British Columbia coming your way. Here's to Deklyn, and the amazing strength he is already displaying. He is incredibly blessed to have a mother like you - you aren't willing to give up. Thank-you for that. Keep on keeping on!
ReplyDeleteSending love light and prayers Deklyn's way. What a fight he and your family are taking on. Thank you for sharing your journey with us and being so open and honest. Deklyn is blessed to have a mother like you and all the prayers of the world behind him.
ReplyDeleteI am praying for Deklyn and your family.
ReplyDeleteJust stopped what I was doing and prayed! God's blessings and healing to Deklyn and your entire extended family. We love you and are hoping for the best as you walk through this trial. 2 Corinthians 1:8-9
ReplyDelete- Jonathan in Knoxville
Prayers for all things good, miraculous and love surrounding you and your family.
ReplyDeleteJust took a break from my workday to pray for little Deklyn and the rest of the family. I've been in the hospital with my children, and it's the hardest thing in the world . . . but still there is light and love and hope, especially in Him.
ReplyDeleteMuch love and prayers for all of you from snowy Wisconsin,
Nate
Praying for strength, healing and peace for Deklyn and for you!
ReplyDeletePraying for you and your sweet baby!
ReplyDeleteCassandra: I don't know why these challenges happen to little angels in loving families like your own. I do know that every experience helps up to grow, and that you clearly understand the power of letting go... and letting God take over.
ReplyDeleteBlessings for to you, and your sweet little son. Sending you love from Santa Monica
Sending love and prayers to you and your family during this most difficult of times.
ReplyDeleteI love how real your post is. I would be scared to death as well. I can't imagine. I know you must be exhausted. It is so hard to see your children hurting and feel helpless to do anything. Praying for your strength, and for your peace, and for the very best for your baby.
ReplyDeleteWhat a gorgeous child. Sending love and strength to all of you.
ReplyDeleteSending you all so much love and so many prayers for your little man to healed and happy!
ReplyDeleteLots of light from Wyoming!
I am praying without ceasing for your family, for Deklyn most of all.
ReplyDeletePlease know that people are praying for you and your precious little one. Sending you hugs and prayers from Wisconsin. God bless you and your family.
ReplyDeleteMiracles are not just for other people. They can also happen to you. I wish you much love through all these trials. May you be surrounded by your angels and i pray that all will be well soon.
ReplyDeleteLots of love and light from Vancouver Canada
Sending you unlimited love and light today for you and your beautiful baby. My heart is wide open and sending love to you. Keeping you in my thoughts today and each day forward. xo
ReplyDeleteLoads of love and light headed your way. Praying that Deklyn stops worrying his family and gets better NOW!
ReplyDeleteSending my love and prayers to you and your family!!
ReplyDeleteMuch love from Boston, Massachusetts
All our love to you!!!
ReplyDeleteGood luck!!! It's terrible that a young, adorable boy such as Deklyn has to go through this. I wish you and your family all the best, and I will keep you in my thoughts.
ReplyDeleteLove from Baltimore
Sending lots of love to Deklyn and your whole family! You are in my thoughts and I am sending you loads of love and hugs this afternoon!
ReplyDeletePoor little guy. He is in my prayers! It's amazing the things God can do and what people can survive. Hang in there, you have A TON of support on your side!
ReplyDeleteI wish to your son and your family all the best! If the law of attraction is true, rest assured that your little warrior will soon be strong and happy, because there are so many people praying for him right now. Stay strong and be optimistic; you're not alone. May our love be with you!
ReplyDeleteMy thoughts and prayers and with you, your family and your precious son. Continue to be strong for him and lean on those around you for support. Take Care.
ReplyDeleteI am sending you and your family love, hugs, and many prayers as you move through these moments with each other. Know that the love you feel for Deklyn is the miracle in the midst of the pain and chaos. Lean on that love and let it fill you. Peace to you all.
ReplyDeletePraying for Deklyn, for his health and healing. Praying for doctors, that they would have wisdom and skill. And praying for you, that you would have strength and comfort from God our Abba.
ReplyDeleteHappy Valentine's Day! My prayers go out to you today. Take care, and God Bless.
ReplyDeletePraying and confessing God's word over Deklyn ... HIS word is life and health to Deklyn's whole body, and nourishment and medicine to his flesh and bones (a paraphrase of sorts of Proverbs 4:22). Believing HIS grace will sustain you and your family through this difficult time.
ReplyDeleteDear Cassandra,
ReplyDeleteNever, EVER give up hope.
You will get through this!
We are ALL praying for you.
Tone of love from Ottawa Ontario!
♥♥♥
Hang in there! You are surrounded with LOVE. Best wishes :)
ReplyDeleteSending so much love to you and your family during this period your post bought me to tears. There are people all over the word praying for you and I wish you all the support and strength during this challenging time. All the best to you all, my thoughts and prayers are with you..
ReplyDeleteim sending so much love and healing energy to you and deklyn. ill be holding you both in my heart and mind...
ReplyDeletexx
I'll be thinking of you often over the next while and sending lots of positive thoughts and love your way.
ReplyDeleteI cannot even imagine what you are going through. Although I don't know your family, I'm sending you tremendous love from Los Angeles, CA. Your sweet little boy is in my prayers.
ReplyDeleteMy thoughts are with you and Deklyn. Love will get you through this xx
ReplyDeleteThinking of you and your family!
ReplyDeletePraying for strenght and healing for Deklyn and your whole family.
ReplyDeleteMay every breath bring you, Deklyn, and your entire family peace, love, and healing.
ReplyDeleteI will be praying for continued healing and peace for you and Deklyn. May God's love and light lift you up.
ReplyDeleteCassondra I am praying for your family and little Deklyn. Angie xxx
ReplyDeleteSending love, blessings and prayers your way
ReplyDeleteMay baby Deklyn be protected and taken cared of
Sending healing vibes and hugs of peace to your family from Nashville, TN!
ReplyDeleteI will light a candle for Deklyn and send healing light. Much love on behalf of myself and all the warmth of those in the Love Bomb Project. Katheryn
ReplyDeleteCassondra, you are amazing, and Deklyn is too. MANY prayers lifted up for you guys and all you're going through. I hope the coming days are a breath of fresh air, peace, health and calm in your lives. You are loved!
ReplyDeleteSending more prayers for Deklyn from Auckland, New Zealand. x
ReplyDeleteSending loving thoughts and prayers for your sweet baby, you, and your family. Know that many hold you in our hearts right now. Stay strong and keep your faith. Trust that all will be well.
ReplyDeleteDeklyn - stay strong brother, stay strong!
ReplyDeleteCassondra,
ReplyDeleteMy heart goes out to you and your family. Deklyn will be in my prayers. God is a God of miracles and there is nothing He cannot do! I will be asking my sister and broinlaw who are pastors to pray with me and to send out the word to our church so that we can all pray for your precious son.
I pray God's peace and rest in your heart. I can't even imagine what you are going through right now, but no you are not alone.
Be encouraged,
Cassie
Praying for Deklyn and for you and your family to keep strong and overcome this very difficult time.
ReplyDeleteLoveBomb from London, UK
From Joan, in Matlock UK, part of LoveBomb, which I just joined. I wanted to add my thoughts and prayers for your family. I will close my eyes and bounce a cloud of love over the Atlantic and all the way to where you are -luckily God will know where that is since I don't. Smiling at you and your little one.
ReplyDeletePraying for your sweet boy and for your family... God can do miracles!!!!
ReplyDeleteLoveBomb from Kansas, USA
None of the situations like this ever make any sense to us on Earth, but God has an almighty plan that far outweighs the best dream we could ever product. Keep your eyes on Him and your heart sealed in His promises. I am earnestly praying that your son will be healed. I pray the Lord holds him in the palm of His hand and brings him to health and happiness. I also pray for peace and comfort for your family as you walk through this season. Stay strong in your God!
ReplyDeleteDefinately praying for you guys! Sending love, thoughts and prayers your direction from MI.
ReplyDeletePraying for your beautiful little man, and all of your family during this difficult time.
ReplyDeleteLove and Hugs from British Columbia, Canada
XOXO
Sending thoughts of peace and love your way....
ReplyDeleteSending healing prayers to your wee Deklyn... Love bomb from Scotland
ReplyDeleteDeklyn is in my thoughts!
ReplyDeleteSending positive thoughts & energy and saying prayers for you, your son and family *hugs - Love Bomb*
ReplyDeletePraying for you and your sweet little boy. <3. May you feel the comforter
ReplyDeleteduring this trying time.
Charlotte from Illinois.
Praying for you, Deklyn, and the whole family! I pray that God will heal Deklyn quickly and completely and that He will bring you peace and strength during this time. Lots of love!
ReplyDeleteSending a silent blessing for you all. A huge hug for your family and a lot of love to deklyn. May your family feel a litle better with this comments. Hang on <3
ReplyDeleteSending much love your way! It's great how thankful you still are for the small things in life- continue that and I pray that your son gets better!
ReplyDeleteSending my prayers for your sweet son. Hang in there, I'm sure you will all pull through. <3
ReplyDeleteI think that you are seriously amazing - you are so strong, and i admire that strength immensely. good luck to you and your whole family with the ongoing battle - i will be thinking of you. Sending you postive vibes, good wishes and lots of love. I hope that he gets well soon. Well done on being such a strong and good mum. Thinking of you all in these hard times.
ReplyDelete