I will make a more detailed post at a later date, but I just wanted to inform all of Dekyns fans that he went to heaven in the morning of February 28th. I feel so blessed to be his mommy and I would do the last 436 days again in a heart beat. I miss you so much buddy... I can't wait to see you again.
I plan on continuing on blogging so keep following me. Thanks for all the prayers and all the support, we need them especially in this incredibly hard time.
Cassondra, what a beautiful tribute to your son, Deklyn. You are an amazing mother and inspire me. I hope that you will find comfort knowing that your experience will help other families with HPP better understand how to cope and I hope you stay involved. We loved getting to know Deklyn and your family. It's ironic that he passed away on Rare Disease Day - which underscores the huge amount of work that we at Soft Bones need to do around raising awareness for HPP and to ensure we get researchers rallied around this disease to find a treatment and ultimately, a cure. Prayers to you and your loved ones.
ReplyDeleteCassondra,
ReplyDeleteThinking of you and your husband in this difficult time. I will pray for you to stay strong and find comfort in the knowledge that Deklyn is now free of the disease and can now experience your Love without the pain he had to endure in his body.
Thank you for your blog, I knew nothing about HPP and I learned a lot through your sharing. Your Love for Deklyn shows in every single word that you write and I know he keeps on feeling it where he is.
Sending you lots of Love and prayers
May the Lord's comfort surround you as you celebrate Deklyn's life. The Lord had plans for him. May God continue to work in peoples lives through the testimony you lived out this past year.God promises"joy in the morning" may you find that joy again.
ReplyDeleteWhat a beautiful testimony of love and faith! Thank you so much so sharing your heart and a glimpse into the life of your precious son. He is dancing with the angels.
ReplyDeleteHello Sawatzky family. I came across your blog through a friend looking for prayer warriors for your little Deklyn about a month ago and have read everything. Deklyn was beautiful. Loved his little face in your pictures and admired your family's strength and courage you had fighting for him everyday in hospital. Though I am sad he's now gone to heaven, I am happy too for he is no longer suffering to breathe or being n pain every day. I am glad he is with the angels and you will see him again.
ReplyDeleteDear Cassondra and Sheridan,
ReplyDeleteWe are so very sorry to hear this news.
We have been following Deklyn's journey since a few weeks after he was born. For many months we have been hoping and praying for your beautiful, amazing little boy.
And now we're praying for you, and hope you find comfort in this sorrow. Know that Deklyn's difficult journey has not been in vain. No doubt that little boy's short time on earth has changed some lives. No one who reads your blog would not marvel at Deklyn's will to live and his parents' unfailing love.
Wishing you peace.
Deb and Grant Mohr
Our prayer go out to you and your family. DeKlyms journey is inspiring to all. God bless you for sharing his story and that of your family's. HPP-Choose Hope and our family thanks you! Dave & Jennifer Heaps
ReplyDeleteI am thinking of the entire family at this difficult time. Deklyn you are a true hero, here on earth and in heaven with all of the other angels.
ReplyDeleteI hope that the entire family finds comfort in knowing that he is now pain free. Cassandra and Sheridan you are both amazing people and I loved reading your blog and knowing about Deklyn. He is definately my hero.
I have 2 little angels in Heaven as well ( both were also born with HPP), so I know how hard it must be for you to say Good bye for now. Praying that God will give you strength in the days, weeks, and months to come.
ReplyDeleteWhat an inspiration your family is. I cannot begin to imagine the hurt of your loss, but like the title of your blog post says, " Deklyn is home" ! Amen. He is healed and with Jesus. I hope in your time of grief, you can take comfort in the fact that he is with Jesus! I am so glad you captured your sons life in so many pictures. His smiles are priceless, and I know you will treasure those photos forever! May God give you comfort and peace.
ReplyDeleteDearest Cassondra and family,
ReplyDeleteI am so so sad to hear your news. I think your strength is amazing and he is out of his suffering now, which is good. But this is obviously awful news and my thoughts go out to you at this incredibly difficult time. The grieving proccess will be long and hard, but you can do it, and you will never ever forget that special child that you had. I dont think any of us who have read your blog will ever forget him. May he rest in peace and may you find peace through that. Lots of love and best wishes xxxxxxxx
There are no words for a parent's grief - sending prayers and love. xoxo
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