Monday, 11 June 2012

More Amazing X-rays!!!

Wow does time seem to fly! We are coming up on 6 months! 6 months of being in the hospital, not being at home, not being with family as much as usual, but also 6 months with the most amazing little boy I have ever met. The past few weeks have had their ups and downs but things in general have been going well. Since Deklyn's trach we've really seen a new baby. We've been getting to give him baths in a little tub which he really enjoys, Sheridan & I have been able to move him around ourselves for the most part,  and we've got to see him smile and what looks like laughing. We are so proud of our little guy!
We've starting learning some of Deklyn's care, like suctioning out his secretions (basically what we can normally cough out), changing his trach dressings & ties, stuff like that! We have much more to learn but its a start and the sooner we learn the more comfortable we will be whenever we get to take him home. Something else pretty exciting is I got the chance to try and breast feed Deklyn, this was something I always wanted to do but I really didn't think I would ever get the chance. It was an awesome experience and I'm hoping we'll get better at it and possibly he'll get his feeds that way rather than just through his g-tube, but we will see!
They did some more x-rays for the study and his bones are looking awesome, but we've come across another bump in the road with his lungs again. They've discovered he has a mild case of Pulminary Hypertension, this is where the blood vessels in his lungs have high blood pressure. Most patients are very sick when they have this but Deklyn is doing pretty good. He has started treatment for it and we are really hoping that in treating it, his recovery will speed up and we will have him off the ventilator soon! The Pulminary Hypertension may have been holding him back, so we really hope as its being treated we will see changes in how he needs to be ventilated!
And here, a very nice way to end off a post, amazing x-rays!!
Here's just a reminder, an x-ray from December 20th (the day he was born)

This 1st x-ray is his Chest in February & the 2nd one is from June


 Here we have his Legs, 1st set is from February 2nd is from June






 And here is his skull, spine & arms from June!


We are so blessed!
We are so grateful!
God is good
and so faithful!
We know we will continue to see
nothing but more of God's goodness!

Looking at these x-rays makes me think of the childrens praise song, "My God is so BIG so strong and so mighty there's nothing my God can not do"

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