Monday, 10 September 2012

More Amazing X-rays!

This is going to be one of my shorter posts, not a whole lot has happened but I know its been awhile since my last post. I wish I could say this last while has been easier but in some ways its felt like the hardest yet. I had been pretty sick with a cold and decided to go home for a night to try and get some rest. When I left everything seemed normal with Deklyn, but on my way back to the city I find out that Deklyn was having some problems and they were pretty sure he had a chest infection. When I get to hospital, I was informed that Deklyn was going back to PICU where he can have 1 on 1 care while he is so sick. I was pretty upset in the moment, and it felt like a HUGE step backwards. I am happy to say that our stay in PICU wasn't very long and we are now back in our little room where we feel a quarter way closer to having a normal life! If your wondering how you can pray for Deklyn,  please pray for his heart rate to come down. Normally while awake he will be anywhere from 130 - 150 but since this infection its been anywhere from 150 - 200.  And as usually please pray for his complete healing. Right now, we feel like we are no where close to coming home and I can not tell you how sick I am of being here. I am so grateful for everything that has been done for us here, but I am so ready to get out. Most people are telling us not to expect to be home for his 1st birthday but I am definitely standing in faith that we will be!


I know Deklyn will be completely healed, and I am so tired of doctors coming in and giving zero hope. Doctors telling me in their eyes there is no chance of him ever being off the ventilator. 1) He had no bones, look at him now 2) He is improving, its slow but there are improvements! 3) Our God is healer!! As often as in my head I feel like I have given up, I have never given up in my heart. I will see my son come off the ventilator this I know with all my heart! Some people might think I'm crazy, that you need to look at the facts. I don't think like that, and I don't think there is any reason not to have hope! 


I've met alot of new familys here in the childrens hospital, and if you have never had one of your own children in the hospital you have no idea what these people go through. There are heart breaking stories here, and they need your prayers too! Please pray for the families with children in hospital, it is a life most parents never expect to live and its one of the hardest things I think someone can go through. 


To cap off this post on a high note, I have some more x-rays to show! 
Here's just a reminder, his December 20th x-ray and  here's his August 28th x-ray! Incredible right??

And here is his left Leg the 1st one is from December 20th and the 2nd is from August 28th. They getting much longer!!

And here is his left arm, the first is from December 20th and the 2nd is August 28th! Amazing :)

You can not look at those X-rays and not be amazed! I am so happy when seeing his progress, and I know there is only more good things to come. Its the waiting that kills me! Its been almost 9 months, and unless you've been through it yourself you have no idea what it is like! I would not wish what we are going through on anybody, its the hardest experience I've ever been through but I am also grateful for the chance to be a part of something as huge as Deklyn's life!

3 comments:

  1. That a girl!!! It's not what we or the doctors see with our natural eyes. It's supernatural through the eyes of faith. The enemy always kicks us when were down, because he knows he's lost the battle. Thats what losers do. But you my dear Cassondra will be renewed in strength. You are the victorious, threw Crist Jesus. I pray we all rise up in faith and take our stand with what God's word says over Deklyn. He is the "Healed of the Lord". And I choose to praise God every day for the manifestations of it. Thank you for sharing your frustations. You have a hugh family in the lord and we want to help you hold your hands up and Praise Him. Victory is around the corner!!! Love Auntie

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  2. WOW!!! I have been reading your blog since Deklyn was born and I agree those exrays are amazing!! Our God is amazing!!! We continue to pray for you and for your little miracle, our first born was in the hospital for 3 months, he was born at 30 weeks with 22q deletion syndrom, so we kinda know what your going through, although our stay was much shorter. You are being a wonderful example, may God bless you!

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  3. Praise the Lord! I love reading that. You are such an awesome woman of faith in God, keep believing! Our God is great and only does great things :) I have been praying for you guys a lot and trying to check back to the blog when I remember. I stand in faith with you for complete wholeness and soundness in his body which is Gods perfect plan fr his life!

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