Some days can feel like I'm only hanging on by a thread... today was one of those kinds of days.. I woke up to a call in the middle of the night, looking at my phone and seeing the hospitals number didn't make me feel to good. Deklyn had a code blue and wasn't doing to well. It days like this that are the hardest, and they seem to come way to often. Were not really sure whats going on with him right now, our best guess is another infection and I really hope that is the issue other wise we have no idea what were dealing with. Part of the issue right now is he needs a longer trach, he's got some narrowing at the end of the one he has in right now so that is causing some issues but there is something much bigger than that going on. He should get his new trach next week so we will see what that all fixes then.
I was really feeling at wits end today. It feels like we just keeping getting one blow after another. People tend to go "Why God?? Why did you let this happen to me" I try my hardest not to get that way.. It can be hard sometimes but I always need to remind myself God did not do this to us. To be encouraging people tend to say "God doesn't give you anything you can't handle".. I may step on a few toes here but I do not agree with this statement at all. God did not GIVE Deklyn HPP, If we serve a loving God who has "plans to prosper you and not to harm you, plans to give you hope and a future" (Jeremiah 29:11) he wouldn't do something like this. I feel like people have taken the phrase "God doesn't give you anything you can't handle" to try and say something nice and encouraging when really maybe what you mean to say is "God will give you the strength to handle any situation you are in", like the verse "I can do all things through Christ who gives me strength" Philippines 4:13. Which is exactly the case! I could not do this without God! I am doing many things I never thought I could and living a way I never thought I'd be able to handle and that is all thanks to God! I find people always like point the finger at God and ask him "Why?" and we forget that there is someone out there who wants to steal, kill and destroy us. This may be a bit harsh, but I hate seeing God constantly get the blame for what the Devil is doing to this world.
On another note!
Thanks to everyone who contacted us for Christmas cards! We got so many orders we can't take anymore, so thank you so much! Some other good news is that Sheridan got a job that should last till just before Christmas!! So it should work out nicely he can work till Christmas and then spend another month with us and then head back home to work again. Thank you to all of you for your continued support. As we're approaching a year in the hospital, its just getting really hard. It would be easier if Deklyn was doing well and heading in the right direction.
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| Look How Far We've Come... This Is Deklyn The Day He Was Born! |
I would like to encourage you today to not take the little things for grated (this is of course for me as well). There are so many people hurting, there is one family I'd like to bring to your attention. I met this mom through facebook, her son has cancer and they have gone to the states for treatment. Here is their facebook page where they post prayer requests and things like that. Please hook up with us in prayer for this little boy. He is healed in the name of Jesus, just like Deklyn! This family has really inspired me, although I do know what it feels like to think you might lose your child I think I would be much more afraid if my child had cancer.
Thanks again for all your support and continued prayers for Deklyn. He is healed in Jesus name, and I know I will see the day where Doctors are amazed at his progress and our surprised that he will be able to be off the ventilator and have his trach taken out!
Thanks again for all your support and continued prayers for Deklyn. He is healed in Jesus name, and I know I will see the day where Doctors are amazed at his progress and our surprised that he will be able to be off the ventilator and have his trach taken out!
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You have come a long way indeed....so proud of you, girl,.....continued prayers and blessigs!!
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