A Bit of a Scare and A Big Encouragment

It hasn't been to long since my last post but we've had a few pretty crazy events happen since then. We had a pretty scary event happen in the evening on the 25th. Things had been going really well, as I always say and it wasn't any different that day. We've really been getting to do alot of things on our own (diaper changes, moving him from our laps back into his bed, things like that) and that day we were going to weigh him. When he was in his incubator, he could be weighed in that but now that he is in a crib he had to be moved to a weigh scale. So the nurse that night said she would lift him and we needed to just watch that all his wires didn't get tangled and that his tubes stayed straight.

We've done this many times so it felt like no big deal. He was weighed and put back on his bed and I heard Sheridan say something about how he'd never seen him turn that color before, and I went to look at Deklyn and he was very purple and blue. I tried not to freak out because I've learned just to relax and whatever needs to be done will already happen, the nurses and doctors are just amazing! I looked at our nurse for reassurance but didn't really get it, I could tell she was a little bit frantic and that had me very worried because even in scary situations these nurses seem to be just so incredibly calm! Our nurse started calling for people to come help her and before I knew it my baby was surrounded by doctors and nurses I couldn't hear what they were saying, I couldn't see Deklyn or what they were doing to him. I was absolutely terrified. I honestly thought we were going to lose Deklyn. After what felt like hours (it probably wasn't much more than 10 mintues) the excitement died down and they called us over to come look at him. What happened was, while he was being moved the tube going down his throat moved up so he wasn't getting help from the respirator. So they had to give him compressions to keep his heart going and put in a new tube. I felt kind of silly but I just needed to know, so I asked his nurse if he was close to dieing. She said "No, if he had been in a desert yes then he would have died" so basically I took that as, there wasn't a good chance of him dieing because there were people there that knew what to do in a situation like that.

I never want to experiance that again... our nurse told us just to be prepared, as he gets stronger he might even pull the tube out himself, and this could easily happen again. But we are praying that it won't! My heart can't handle seeing that again, that is for sure!
Now how about some good news?? So Deklyn has been getting xrays taken since he was born, mainly they have always just been of his chest cause everytime they put a tube in they have to make sure its going far enough down and not to far, and they've had to check him for collapsed lungs and stuff like that. But the other night our nurse asked a doctor to show us some of his x-rays. The doctors and nurses were just so excited when showing us them which made us even more excited!
Here is an x-ray from from December 27th (almost 1 week from when he started treatment)

You can see his rib cage is terribly narrow, and the ribs are so thin (like spaghetti), you can't see anything in his chin.
Now here is an extra taken on January 25th (over 5 weeks since he started treatment) this xray was taken after the whole tube ordeal to make sure the tube was in right.

 Amazingly, he had no breaks for fractures from the compression and getting the new tube in! You can see his ribs are getting much thicker and you can even see a chin bone and some teeth! Who would have ever thought there would ever be a drug that could make someones bones grow? I for one am just blown away! But of course, we probably shouldn't be to surprised. We knew we had someone looking out for us :) I really can't wait to see the x-rays that are actually taken for the study, we will be able to see so much more from those!
As I always say thank you so much to all of you for all your support! No matter what is, if you feel it was big or small we are so thankful! You will be so blessed for being such a blessing to us!