We've had a few changes since my last post! Yesterday Deklyn was moved into a crib in NICU, he no longer needs the heat an incubator provides and the crib provides easier access to him. We also found out they want us to hold Deklyn once a day, so that was super exciting news! We weren't expecting that to happen for quite sometime! What a huge blessing! Its not exactly like you would hold a baby normally, we first put a nursing pillow on our laps and then him and his special mattress gets put on top of that. It is just so nice to be able to feel closer to him and to see him so content when your holding him makes me feel so good!
Speaking of blessing, we have another person wanting to help us out! You can check her out here:
"Guess What?" I Love You. Boutique She is selling Bobbypin Flowers and 100% of the proceeds she will be donating to Deklyn's Journey. I am just blown away by all the support we've seen. We feel so blessed by all of you who have helped us in anyway at all. Just saying thank you really doesn't feel sufficient.. and the funny thing is, often I find when people are coming to us asking if they can help us in anyway and after I say "Well of course, I can't say no if that is what you feel you want to do!" people are thanking us for letting us them help! So again I will say, from the bottom of our hearts, we are so so thankful to each and everyone of you no matter what you have done. Big or small, we thank you!
Deklyn's main study doctor came by to talk to us the other day and she thinks Deklyn is doing very well. Of course she says it will be a long journey, but he's doing so good this far! I've been kind of concerned about his arms, as far as I know his limbs are the shortest out of all the babies they have seen with HPP. I asked her if she thinks they will grow, because no one has really told me if they would or not. Of course I believed that they would but I wanted to know what she thought. She said that she was sure that they would, she wasn't sure how they'd go about making sure they would end up straight but she was sure they'd grow. That made me very happy to hear! I know its not all about appearance but I didn't want Deklyn going through life being made fun of because he had strange looking arms and legs.
I don't have much else that is new... For those of you who are praying for us, I would like to ask that you pray for patience for Sheridan and I. Right now things have been going quite fast but, as Sheridan goes back to work and will only be here on the weekends and I know for both of us the days will start to feel longer. Some days all I can think about is just putting my little boy in a car seat and taking him home. I want him to meet his cousin, and soon he will be getting a new cousin and I just so badly wish he could be a part of those fun occasions! I know the best place for him is right where he is but sometimes you can't help but wish things were different. We really are hoping and praying that he will be out of the hospital in May, because his auntie and soon to be uncle will be getting married then. It would be very sad for us if he could not be there, if you would like to pray that he be out of the hospital then too we would really appreciate it :)




Oh how i love to see pictures of you two holding him...such an answer to prayer! And as far as praying he can be at the wedding...been doing that for a while now. :)
ReplyDeleteGod is so good! I love reading all the good news. Continuing to pray and believe with you guys.
ReplyDeleteSo glad you get to hold Deklyn, that is amazing! God is good, He will see you through!
ReplyDeleteYour strength is an encouragement to many! I remember in one of your other posts how one of the Dr's said it would be such a long time before you would ever hold your son and now you are getting to hold him every day!!!! Praise The Lord!!!
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