Happy 2 Months Deklyn!

Our sweet little munchkin is 2 months old today! Hard to believe but at the same time it feels like its been longer! 2 months of being in the hospital down, hopefully not to much longer to go!
Here is a picture of him from 1 month ago!

and here is one from today!

He has definitely grown which is awesome! I have seen a significant improvement in his limbs as well, in the first picture his arms are up high by his head but in the 2nd they are lower and I think they are getting longer as well.
We are having some issues, in my last post I mentioned how Deklyn was supposed to be getting a new tube and how it seemed to urgent but was never happening. Every morning they have what they call 'rounds' were all the doctors and nurses talk about each baby and what the plan is for them that day, or in the near future. Sheridan and I decided to speak up about Deklyn's tube issue, he had been just miserable for the past day and that day wasn't going any better. The doctor that day pretty much told us that he is being ventilated right now, all his numbers are good, he is fine and doesn't need a new tube right now. She didn't want to hear much of what we had to say but I told her how frustrated we were, being told how great this new tube would be for our son and suddenly being told he'll be fine like this. I also mentioned we were told not to hold him till he got the new tube, and she told me that holding him while on the respirator was a risk either way it didn't matter how small the tube was.

I was obviously not to impressed to here that, but I guess we're just starting to realize how some of these doctors operate. I was an obviously upset mom, wanting to help my son feel more comfortable and it didn't seem to matter. One nurse came to help us so Sheridan could do Kangaroo Care (Which was so awesome!) and she really encouraged us. She has had a sick kid in the hospital as well, and she told us not be afraid to say what we think is best for him. We know him better than nurses that work with him the most and we need to be is advocate.  She told us it didn't matter if we had the right words, or knew exactly what to ask for but we need to keep bugging them until we feel our son is happy. She also said we'd have to develop some thick skin (which could be tough for me) because we will start to see people rolling their eyes and make comments when we speak up but we need to do what we think is best for our little boy even if we aren't quite sure what that is.

I knew I really needed to hear that, it is hard when your up against a bunch of professionals. You feel like they should always know what is best, but the reality is they don't. It really feels good to know we have a bunch of nurses on our side that feel Deklyn needs a new tube and I'm not just imagining things. He has just been so much more irritable lately, and they have been having to bump up his settings because the tube is too small. I want my son to be able to start breathing on his own, and strengthen his muscles and this tube seems to be in the way of all that! If you want to pray for Deklyn, please join us in believing he will be able to get a new tube soon, and it will be in the best conditions.

While I'm at it I may as well add another prayer request!
I've been needing a little more help to stay positive lately... I know most people tell me they can't believe how positive I am about everything... but it does get really hard some days. Especially when I start to miss family and being home, it can be really hard. So for me I'd just like prayer that this time in the hospital for us goes quick, and to not get stuck on the things I can't change and to stay positive.
Thank you to all of you for your support, prayers and encouraging words.

One night, I was having trouble sleeping so I decided to read my bible on my Ipod. I turned it on and it went right to this, I found it very encouraging and I hope it does the same for anyone reading this.
Isaiah 40:27-31 (message bible)
Why would you ever complain, O Jacob, or whine, Israel, saying, "God has lost track of me. He doesn't care what happens to me"? Don't you know anything? Haven't you been listening? God doesn't come and go. God last. He's the creator of all you can see or imagine. He doesn't get tired out, doesn't pause to catch his breath.And he knows everything, inside and out. He energizes those who get tired, gives fresh strength to dropouts. For even young people tire and drop out. Young folk in their prime stumble and fall. But those who wait upon God get fresh strength. They spread their wings and soar like eagles. They run and don't get tired, they walk and don't lag behind.