Decisions To Make

Hello Everyone! Not terribly  much is new here, Deklyn had to go back from the neobar to tapes because the neobar really wasn't very secure. He got a good day with it and gave his cheeks a chance to heal a bit so that was good. He seems to be growing alot lately which is really nice to see! His body has most definitely gotten longer and his legs and arms seem to be getting there too! Even though he's still the weight of some bigger new borns it feels like my little baby boy has grown up a bit, and I guess by 4 and 1/2 months you'd hope he would have!

We've been faced with some pretty tough questions as  parents. At least its sure felt tough for us. When we started with the study, mostly everyone we talked to said tracheostomy's (where the breathing tube is put through a hole in the throat) were something they wanted to avoid and with all the HPP kids they had. A few days ago we were approached with the idea that a trach would be a very good thing for Deklyn. It all sounded great, they said they think he will be vented for months yet and with this type of venting it can become really irritating having something in your mouth all the time and in your throat moving around. Also the tape they put on his face, which has done some damage already.

 They say alot of exciting things like eventually when he is really stable getting to take him for walks, feeding him, if we are really comfortable with his care possibly taking him out of the hospital for a bit, lots of really really good things! At the same time they would do a trach they would also put in a g-tube (a feeding tube put in through his tummy directly to his stomach) so his face would be free, we'd get to do a lot more of his care and possibly some really exciting fun stuff all new parents look forward to doing with their kids. If he does need to be vented for an extended period of time but is really well enough to be home, he can come home trached so that was nice to hear as well. But at the same time, Sheridan and I had really high hopes he'd be off the vent by now and even home. So its hard to hear that things aren't going how you wanted, and no parent ever wants their child to go through a surgery. 

We feel we have come to a decision but please continue to pray for us. We want to do the very best thing for Deklyn, we don't want to go through with a trach because it will allow us to do more things we'd like to do, we don't want to not do a trach because we didn't want him to have to go through any surgerys. We are going to get a meeting with a bunch of people who can answer all our questions so I'm sure after that we will know for sure what we want to do. We only want to make our little boys life the very best that it can be, I know one day we will have him home but for right now we'll have to sit tight and with God's help make the right decisions for him.